对于研究问题的疑问:在学习健康系统中,让患者参与长期COVID研究优先考虑
Ann Blair Kennedy1,2,3, Ariana Mitcham3,4, Katherine Parris3
1Biomedical Sciences University of South Carolina School of Medicine Greenville South Carolina USA.
Learning health systems
|June 17, 2024
概括
患者参与研究至关重要,特别是在长期COVID等新出现的疾病中. 这项研究开发了一种方法,让患者参与形成和优先考虑研究问题,从而导致以患者为中心的研究.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者参与 患者参与
- 新出现的疾病 新出现的疾病
背景情况:
- 患者参与对于学习卫生系统至关重要,但缺乏研究问题形成的方法.
- 参与患者的研究优先级是不发达的,特别是对于长期COVID等新出现的疾病.
- 长期COVID研究中有意义的患者参与的具体策略还没有得到很好的定义.
研究的目的:
- 开发和评估一种方法,让患者参与长期COVID研究问题的形成和优先考虑.
- 创建以患者为中心的方法来识别和排名急性后SARS-CoV-2综合征的研究优先事项.
- 解决新出现的疾病患者参与策略的差距.
主要方法:
- 建立了COVID-19专注的虚拟患者参与工作室 (CoVIP工作室),一个多元化的虚拟小组.
- 培训了研究和长期COVID的小组成员.
- 实施了三步方法:记录"疑问",分析PICOT元素,并调查优先级.
主要成果:
- 分析了小组成员的"疑问",以确定PICOT元素,形成调查的基础.
- 根据小组成员的意见,使用PICOT格式制定了10个研究问题.
- 专家小组成员根据重要性对研究问题进行了排名,并分配了虚构的赠款美元,成功地将"奇迹"转化为可调查的问题.
结论:
- 开发的方法有效地将患者的"疑问"转化为优先级,可调查的研究问题.
- 这种方法为长期COVID研究中患者参与优先考虑提供了一个模型.
- 该方法对罕见和新兴疾病研究具有更广泛的意义,需要患者的意见.
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