儿童和青少年时期的癌症倾向综合征带来了一些挑战,需要在专门的项目中进行跨学科的护理
Stefanie Kaffai1, Daniela Angelova-Toshkin1, Andreas B Weins2
1Pediatrics and Adolescent Medicine, Faculty of Medicine, University of Augsburg, Augsburg, Germany.
Frontiers in pediatrics
|June 18, 2024
概括
儿童癌症易感综合征 (CPS) 计划确定有风险的儿童. 在这些计划中,早期监测可以检测瘤和超慢性瘤,改善患者的治疗结果和心理社会福祉.
科学领域:
- 儿科瘤学 儿科瘤学
- 临床遗传学 临床遗传学
- 癌症倾向症候群 癌症倾向症候群
背景情况:
- 遗传倾向是儿童癌症的关键因素,已知有100多种癌症倾向综合征 (CPS).
- 已建立的监测协议旨在减少受影响儿童的发病率和死亡率.
- 儿科CPS项目对于将新知识纳入临床实践至关重要.
研究的目的:
- 评估儿童癌症易感综合征 (CPS) 计划的有效性.
- 评估疑似CPS儿童的监测和诊断结果.
- 要强调在管理儿科CPS的跨学科护理的需要.
主要方法:
- 来自儿科CPS计划 (2021年10月 - 2023年3月) 的数据的回顾分析.
- 包括儿童,青少年和年轻成年人进行监视或有可疑特征.
- 到2023年12月收集的后续数据.
主要成果:
- 67名患者被确定,其中48人最终被诊断患有CPS.
- 监测发现了新的瘤 (2) 和超慢性瘤 (4).
- 35.6%的家庭使用了心理社会咨询.
结论:
- 儿科CPS计划对于管理多样化和复杂的综合征至关重要.
- 跨学科的护理是必要的,以改善结果和心理社会福祉.
- 联合临床和研究工作对于推进儿科CPS护理至关重要.
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