分析在线论坛以确定左心室辅助器件患者的信息需求和知识差距:一项定性研究
Nasra Abdelhadi1, Stav Klein2, Moni Shahar2
1Nursing Department, The Stanley Steyer School of Health Professions, Faculty of Medical and Health Sciences, Tel Aviv University, Haim Levanon 55, Tel Aviv 6997801, Israel.
European journal of cardiovascular nursing
|June 18, 2024
概括
社交媒体分析显示,对于左心室辅助器件 (LVAD) 候选人和患者来说,存在重大未满足的信息需求. 关键问题包括自我护理,并发症和设备的利弊,突出显示了有针对性的教育资源的需要.
科学领域:
- 心脏病学 心脏病学
- 医疗信息学 医疗信息学
- 患者教育 患者教育
背景情况:
- 左心室辅助器件 (LVAD) 对末期心力衰竭至关重要.
- 在整个LVAD过程中,患者,护理人员和家人面临着独特的信息挑战.
- 了解患者报告的需求对于改善LVAD治疗结果至关重要.
研究的目的:
- 探索左心室辅助器件 (LVAD) 候选人,患者及其支持网络的知识差距和未满足的信息需求.
- 通过使用MyLVAD.com.com的社交媒体数据来分析真实世界的患者问题.
- 确定可以为LVAD社区增强教育资源的关键领域.
主要方法:
- 来自MyLVAD.com (2015年3月至2023年2月) 的856条帖子和评论的定性内容分析.
- 系统地将用户生成的问题分类为主题.
- 自动数据检索专注于真正的信息搜索查询.
主要成果:
- 435个帖子包含了表明未得到满足的信息需求的问题.
- 调查发现了六个主要类别:服装,并发症/不良反应,LVAD的优缺点,自我护理,治疗和最近的LVAD植入.
- 自我护理 (驱动器管理,设备功能) 是最常见的主题,其次是并发症和设备的优缺点.
结论:
- 社交媒体数据为患者对LVADs的担忧提供了一个公正的视角.
- 在LVAD候选人,患者及其支持系统中存在重大未满足的信息需求.
- 针对特定知识差距的定制教育材料对于改善LVAD患者护理至关重要.
相关概念视频
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