[国家儿童癌症登记]
Miklós Garami1,2, Zsuzsanna Jakab1,2
11 Nemzeti Gyermekonkológiai Regiszter, Magyar Gyermekonkológiai Hálózat Budapest Magyarország.
Orvosi hetilap
|June 18, 2024
概括
匈牙利儿童癌症注册局成立于1971年,追踪儿童癌症数据. 它在2010年向在线系统过渡,改善了数据收集,以便更好地评估治疗.
科学领域:
- 儿科瘤学 儿科瘤学
- 流行病学 流行病学
- 医疗信息学 医疗信息学
背景情况:
- 匈牙利儿科瘤学网络自1971年以来一直保持着儿童癌症登记.
- 该注册表收集有关儿童癌症流行病学,治疗,结果和随访的综合数据.
- 它位于塞梅尔维斯大学儿科中心.
研究的目的:
- 描述匈牙利儿童癌症登记处的结构,数据源和操作程序.
- 要突出注册表的演变,特别是向在线报告系统的转变.
- 强调注册在评估儿科癌症治疗和医疗保健投资方面的重要性.
主要方法:
- 从国家医疗保险基金和匈牙利儿瘤网络中心收集数据.
- 包括所有018岁的拥有社会保障卡的匈牙利儿童.
- 自2010年4月起实施在线报告系统,取代纸质系统.
- 通过既定程序严格验证数据和完整性监控.
主要成果:
- 自1971年以来,该注册表一直在连续运行,并适应了现代数据管理技术.
- 在线系统提高了流行病学研究和治疗分析的数据准确性和可访问性.
- 数据通过年度报告,科学出版物和会议报告进行传播.
结论:
- 匈牙利儿童癌症登记处是匈牙利儿科瘤学的重要资源.
- 该注册表的长期运行和数据质量对于改善儿童癌症护理和结果至关重要.
- 过渡到在线系统代表了管理和利用这些关键健康数据的重大进步.
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