在头部和部癌症幸存者的晚期系统症状的定性分类
Poppy Schoenberg1, Elizabeth Wulff-Burchfield2, David Schlundt3
1Osher Center for Integrative Health, Vanderbilt University Medical Center, Nashville, TN 37203, USA.
头癌幸存者经历了严重的慢性情绪困扰和疲劳影响日常生活. 改善的幸存者护理必须解决这些心理社会和身体症状,以获得整体的长期解决方案.
科学领域:
- 在瘤学瘤学.
- 心理社会瘤学
- 幸存者研究研究 幸存者研究
背景情况:
- 越来越多的头癌幸存者需要改善长期支持性护理.
- 美国目前的幸存者诊所不足以满足这个不断增长的人口的需求.
- 多模式治疗的进步已经超过了相应的支持性护理的发展,导致许多幸存者的生活质量下降.
研究的目的:
- 质量地探索头癌幸存者的生活经历.
- 了解晚期系统性症状对幸存者的日常生活,包括工作,人际关系和自我认同的深刻影响.
- 确定关键的症状集群及其对幸存者护理的影响.
主要方法:
- 对15名头癌幸存者的半结构面试进行了定性主题分析.
- 包括治疗后至少12个月的幸存者.
- 数据分析结合了诱导性等级线性建模与演性临床报告.
主要成果:
- 慢性情绪障碍是讨论最多的症状 (43.36%的材料),显著影响其他生活领域.
- 一个主要的症状集群包括情绪/情绪受损,日常活动和疲劳.
- 二级集群涉及睡眠功能障碍,并发症和认知缺陷;疼痛和食欲等身体问题是最不讨论的.
结论:
- 晚期的全身性症状,特别是心理社会症状,对头癌幸存者来说是一个重大的长期负担.
- 目前的护理计划不足以解决这些普遍且具有影响力的症状.
- 开发有针对性的,多维的治疗计划,以解决身体,心理和精神需求,对于整体的幸存者护理至关重要.
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