富兰顿生理学儿童和青少年的幸福感
Kate H Marshall1, Yves d'Udekem2, David S Winlaw3
1Heart Centre for Children, The Sydney Children's Hospitals Network, Sydney, NSW, Australia; School of Clinical Medicine, University of New South Wales, Sydney, NSW, Australia.
The Journal of pediatrics
|June 19, 2024
概括
患有Fontan生理学的儿童和青少年与同龄人相比,与健康相关的生活质量 (HRQOL) 较低. 心理因素,如焦虑和抑郁,显著影响他们的生活质量 (QOL).
科学领域:
- 儿童心脏病学 儿童心脏病学
- 生活质量研究 研究 生命质量研究
- 遗传性心脏病研究 遗传性心脏病研究
背景情况:
- 丰田生理学是一种复杂的手术缓解单心室先天性心脏缺陷的复杂手术,对受影响的儿童和青少年构成长期挑战.
- 评估与健康相关的生活质量 (HRQOL) 和全球生活质量 (QOL) 对于了解这一群体的综合福祉至关重要.
研究的目的:
- 评估儿童和青少年群体的HRQOL和全球QOL,使用Fontan生理学.
- 确定影响HRQOL和全球QOL结果的关键预测因素,包括临床,心理和社会人口因素.
主要方法:
- 对来自澳大利亚和新西兰的73名儿童和青少年 (6-17岁) 进行了横截面分析,这些儿童和青少年来自澳大利亚和新西兰的Fontan注册,Fontan手术后至少12个月.
- 用儿科生活质量库存 (PedsQL) 评估HRQOL,使用视觉模拟尺度评估全球QOL. 用各种验证的社会人口统计学,临床,心理,关系和家长因素的措施.
主要成果:
- 与规范数据相比,参与者在所有领域报告了显著较低的HRQOL.
- 虽然大多数参与者报告了公平的全球QOL (中位数7.0/10),21%的人经历了焦虑,26%的人经历了抑郁症状.
- 心理因素,特别是抑郁症状和与治疗相关的焦虑,是显著的预测因素,解释了HRQOL的37%,全球QOL的25%的差异.
结论:
- 与社区规范相比,患有Fontan生理学的儿童和青少年的HRQOL减少,尽管通常报告了足够的全球QOL.
- 在这个群体中,心理幸福感成为QOL的主要决定因素.
- 旨在增强心理健康的干预措施被推用于改善Fontan生理学个体的整体QOL.
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