儿童生活融入成人瘤学:一种混合方法可行性研究
David L Lysecki1,2, Daryl Bainbridge1,3, Tracy Akitt2
1McMaster University, Hamilton, Ontario, Canada.
Psycho-oncology
|June 20, 2024
概括
一个试点项目提供儿童生命专家 (CLS) 在成人瘤治疗方面,成功支持了面临癌症的家庭,显示了患者报告的积极结果,并指导了未来的以家庭为中心的护理计划.
科学领域:
- 在瘤学瘤学.
- 儿科健康 儿科健康
- 家庭支持服务 家庭支持服务
背景情况:
- 父母的癌症诊断对儿童的健康和发育有重大影响.
- 儿童生命专家 (CLSs) 在医疗环境中支持儿童,但在成人瘤中心很少提供.
- 为了弥补这一缺口,在第三级瘤学中心实施了一项试点CLS计划.
研究的目的:
- 评估一个试点儿童生命专家 (CLS) 计划在成人瘤环境中的实施和影响.
- 了解为癌症患者的家庭提供CLS服务的运营方面.
- 在瘤学中为未来的以家庭为中心的护理模式的发展提供信息.
主要方法:
- 一项混合方法研究,收集行政,临床和患者报告的数据.
- 在计划开始之前和计划开始后2个月收集的数据.
- 对转诊人数,临床接触,干预类型和患者结果的分析.
主要成果:
- 98个家庭被转诊,91个参与了10个月的257次临床接触.
- 大多数患者是母亲 (平均年龄45岁),患有乳腺癌 (24%),通常是第四阶段.
- 干预措施包括诊断教育和丧亲支持;大多数患者发现该计划有帮助,结果有所改善.
结论:
- 试点CLS计划为未来的发展提供了对计划运营的宝贵见解.
- 该计划展示了作为成人瘤学中以家庭为中心护理的关键组成部分的潜力.
- 帮助儿童和家庭应对亲人癌症诊断的CLS服务至关重要.
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