重新思考为患有间皮瘤的人提供初级保健的连续性
Emilie Couchman1, Steph Ejegi-Memeh1, Sarah Mitchell2
1University of Sheffield.
概括
患有间皮瘤的患者由于缺乏灵活性的初级保健系统而经历了未满足的护理连续性需求. 需要转向多学科团队 (MDT) 的责任,以改善对复杂疾病的护理.
科学领域:
- 在瘤学瘤学.
- 公共卫生 公共卫生
- 医疗保健系统研究 医疗保健系统研究
背景情况:
- 与石棉暴露有关的绝症性疾病 - - 间皮瘤,在英国国家卫生服务 (NHS) 的初级保健系统中,对护理的连续性提出了重大挑战.
- 尽管存在困难,但被诊断患有间皮瘤的个人及其支持网络高度重视护理的连续性.
研究的目的:
- 调查患有间皮瘤的个人,他们的亲密人员和医疗保健专业人员 (HCP) 在初级保健中的连续性经验.
- 探索促进或阻碍护理连续性的机制.
- 了解连续性对医疗保健服务利用的影响.
主要方法:
- 采用现实的案例研究,检查患者通过医疗保健系统的旅程.
- 与9名患者,8名亲密人士和12名医疗保健工作人员进行了纵向采访 (总共30.8小时).
- 使用上下文-机制-结果配置分析数据,以了解潜在的过程.
主要成果:
- 鉴定了与中瘤护理独特的挑战.
- 评估患者,亲属和医疗人员促进连续性的能力.
- 突出了多学科团队 (MDT) 方法和传统家庭医生模式之间的差异,与会者描述了"NHS初级保健系统破裂".
结论:
- 患者报告说,由于初级保健系统的不灵活性,不满足的连续性需求.
- 医疗保健系统需要调整以适应复杂的长期疾病和新型治疗方法.
- 社会视角的转变是必要的,承认MDT内部的共同责任,而不是单独的家庭医生;政策必须优先考虑连续性与访问.
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