确定长期COVID患者的需求:英国的一项定性研究
Amy Miller1, Ning Song2, Manoj Sivan3
1School of Psychology, University of Leeds, Leeds, UK ps16am@leeds.ac.uk.
BMJ open
|June 21, 2024
概括
在英国,长期COVID (LC) 患者需要更好的支持系统,更多关于疾病的研究,以及提高社会意识. 解决这些需求对于改善LC患者的生活质量至关重要.
科学领域:
- 公共卫生 公共卫生
- 定性研究是指质量研究.
- 患者体验 患者体验
背景情况:
- 长期COVID (LC) 提出了一个复杂的挑战,影响了个人的日常生活.
- 越来越需要了解LC人口的多方面的需求.
- 现有的支持结构可能无法充分满足LC患者的独特需求.
研究的目的:
- 为了识别和界定在英国境内经历长期COVID (LC) 患者的基本需求.
- 为LC社区制定有针对性的支持系统和政策提供信息.
主要方法:
- 一个使用框架分析的定性研究.
- 分析了与25名被诊断患有LC的成年人进行的8次焦点小组讨论的数据.
- 参与者通过各种道招募,包括医疗保健服务和社区计划.
主要成果:
- 三个主要主题出现了: 1) 加强支持系统包括社区,财务,临床和就业援助,以适应LC需求.
- 2) 增加对LC生理学,诊断工具和治疗干预措施的研究.
- 3) 提高公众和社会意识,以减少耻辱和改善对LC的理解.
结论:
- 长期的COVID显著影响日常生活,需要政府承认LC是一种残疾.
- 对于患有LC的人来说,获得残疾人支持和法律保护至关重要.
- 以患者为导向的政策制定对于解决个体需求和提高LC患者的生活质量至关重要.
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