晚期心力衰竭患者及其护理人员的预后理解:一项纵向二度性研究
Louisa Camille Poco1, Ellie Bostwick Andres1, Ishwarya Balasubramanian1
1Lien Centre for Palliative Care, Duke-NUS Medical School,169857, Singapore.
Patient education and counseling
|June 21, 2024
概括
心力衰竭患者和护理人员的预后理解 (PU) 受自身和彼此的经验的影响. 持续的沟通对于改善患者和护理人员的PU至关重要.
科学领域:
- 心脏病学 心脏病学
- 心理学 心理学 心理学
- 医疗保健通讯 医疗保健通讯
背景情况:
- 准确的预后理解 (PU) 对于心力衰竭 (HF) 患者及其照顾者来说至关重要,以导航治疗决策并有效地管理疾病.
- 患者和护理人员之间的双向关系显著影响健康结果和患者的疾病经验.
- 需要进行纵向研究,以了解随着时间的推移,影响PU的因素的动态相互作用.
研究的目的:
- 纵向检查心力衰竭患者及其护理人员的预后理解 (PU).
- 确定患者和护理人员与自身和彼此的PU相关的因素.
- 探索患者健康状况,护理人员痛苦和护理时间对PU的影响.
主要方法:
- 从新加坡的95个心力衰竭患者-护理人员二极管中收集的纵向二极管数据.
- 调查每4个月进行一次,长达4年.
- 随机效应多项物流模型用于评估PU与患者/护理人员特征之间的关联,控制共变量.
主要成果:
- 在基线时,50%的患者和护理人员报告了正确的PU.
- 较差的患者功能福祉与较低的正确PU.
- 增加护理人员的心理困扰与护理人员报告的正确PU的减少相关.
- 较长的护理时间减少了患者报告的正确PU,增加了不确定的PU.
结论:
- 预后理解心力衰竭双是一个动态的过程,受个人和共同经验的影响.
- 患者的功能状态和护理人员的心理健康是影响PU的关键因素.
- 患者和护理人员之间加强和持续的沟通对于改善预后理解和潜在的结果至关重要.
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