与轴性脊柱关节炎生活:对患者知识和感知的横截面调查
Olena Zimba1,2,3, Zofia Guła4,5, Magdalena Strach4,5
1Department of Rheumatology, Immunology and Internal Medicine, University Hospital in Kraków, Kraków, Poland. zimbaolena@gmail.com.
Rheumatology international
|June 22, 2024
概括
轴性脊柱关节炎 (AxSpA) 患者知道运动至关重要,但面临着疼痛和疲劳等障碍. 改善康复和医生沟通的机会是改善AxSpA管理和患者满意度的关键.
科学领域:
- 类风湿病学 类风湿病学
- 患者为中心的护理
- 公共卫生 公共卫生
背景情况:
- 轴性脊椎关节炎 (AxSpA) 的诊断和治疗往往会延迟.
- 意识不足和患者与医生的沟通不良,阻碍了AxSpA的有效管理.
- 以患者为中心的护理需要了解患者对生活方式和医疗保健的看法.
研究的目的:
- 调查AxSpA患者关于他们的医疗保健规划和管理.
- 探索患者对诊断,身体活动和生活方式的看法.
- 评估对医疗保健,沟通和疾病管理支持的满意度.
主要方法:
- 在雅盖洛尼亚大学医学院对117名AxSpA患者进行了线下调查.
- 调查问卷涵盖了身体活动,炼障碍,医疗保健满意度和沟通.
- 数据收集时间为2023年12月至2024年4月.
主要成果:
- 大多数AxSpA患者 (88.9%) 意识到身体活动的重要性,但只有27.35%的患者经常运动.
- 障碍物包括疼痛 (27.35%),疲劳 (23.08%) 和缺乏动力 (14.53%).
- 患者在康复和水疗疗法的准入方面存在很大的不确定性和不满.
结论:
- AxSpA患者面临着定期体育活动的重大障碍,尽管承认其益处.
- 需要个性化策略来解决障碍,改善康复准入.
- 加强患者与医生的沟通和对医疗保健服务的满意度对于最佳的AxSpA护理至关重要.
关键词:
轴性脊椎关节炎 (Axial spondyloarthritis) 是一个关节性关节炎.诊断延迟导致的延迟.生活方式 生活方式身体活动 身体活动康复 康复 康复 康复调查和问卷调查和问卷调查.治疗方法 治疗方法更多相关视频
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