对先天性心脏缺陷咨询的挑战的观点
Joyce L Woo1,2, Rupali Gandhi3,4, Shelvonne Burton5,6
1Division of Cardiology, Department of Pediatrics, Ann & Robert H. Lurie Children's Hospital of Chicago,, Northwestern University Feinberg School of Medicine, 225 E. Chicago Ave, Box 21, Chicago, IL, 60611, USA. jwoo@luriechildrens.org.
Pediatric cardiology
|June 22, 2024
概括
先天性心脏缺陷 (CHD) 咨询提出了超越解剖学的挑战,包括重复成像和信息不足. 改善沟通需要在整个诊断和管理过程中解决这些问题.
科学领域:
- 儿童心脏病学 儿童心脏病学
- 医学沟通 医学沟通
- 患者咨询咨询 患者咨询
背景情况:
- 以前关于先天性心脏缺陷 (CHD) 咨询的研究集中在沟通准确性和情感支持上.
- 有效的咨询对患者和家庭导航CHD诊断至关重要.
研究的目的:
- 为了确定超出基本信息传递的CHD咨询的具体挑战.
- 通过结构化沟通框架,探索未来干预的领域.
主要方法:
- 从婴儿进行先天性心脏手术的护理人员获得的定性数据的二次分析.
- 半结构面试的专题分析,使用SPIKES框架组织 (设置,感知,邀请,知识,同情心,总结/战略).
主要成果:
- 在160名受访者中,有35人 (21.9%) 报告了咨询方面的挑战.
- 在所有SPIKES领域确定了12个不同的挑战.
- 主要挑战包括认为不必要的成像 (知识),缺乏心脏病专家的存在 (设置) 和不足的诊断信息 (知识).
结论:
- 先天性心脏缺陷 (CHD) 咨询面临着影响患者感知的多方面的挑战.
- 有效的咨询需要解决像成像和提供者可用性等实际问题,而不仅仅是解剖细节.
- 干预措施应侧重于改善心血管疾病患者和家属的综合咨询体验.
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