"其他一千个小时":脊髓损伤自我管理计划定性分析
Bridget Kraus1, Annie Lakin1, Natalie Sherbrooke1
1University of Missouri-Columbia, USA.
OTJR : occupation, participation and health
|June 24, 2024
概括
脊髓损伤 (SCI) 患者从量身定制的自我管理 (SM) 计划中受益. 一个以小组为基础的远程医疗干预促进了社区和问责制,改善了SCI幸存者的积极健康管理.
科学领域:
- 康复医学 康复医学 康复医学
- 健康心理学 心理健康心理学
- 社区健康 社区健康
背景情况:
- 二次性健康状况 (SHCs) 显著影响脊髓损伤 (SCI) 患者,影响预期寿命和功能.
- 已建立的自我管理 (SM) 策略在SCI人群中表现出有限的成功.
- 需要量身定制的干预措施来支持长期的SCI管理.
研究的目的:
- 为SCI自我管理而设计的基于小组的新型远程医疗计划中探索参与者的经验.
- 确定有助于脊髓损伤自我管理 (SCISM) 计划有效性的关键要素.
- 了解如何定制干预措施可以解决慢性SCI阶段的持续需求.
主要方法:
- 使用解释性现象学分析 (IPA) 的定性研究.
- 与22名完成了SCISM计划的参与者进行了半结构化采访.
- 使用主题分析来识别反复出现的经验和感知.
主要成果:
- 四个主要主题出现了:"社区意识"",被问责"",我还在学习"和"积极主动而不是反应".
- 参与者重视同行支持和通过小组形式促进的经验分享.
- 问责制和持续学习被认为是有效自我管理的关键.
结论:
- 定制的,以社区为重点的远程医疗干预措施对于支持SCI患者至关重要.
- 该SCISM计划的成功凸显了在管理慢性SCI时培养社区和问责制的重要性.
- 需要持续的支持来解决心理健康问题,并提高SCI人口的自我管理技能.
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