系统性硬化症患者对美学损害的感知,用半定量尺度确定,以及其与疾病特征的关联
Méryem-Maud Farhat1,2,3, Pierre Guerreschi4,5, Sandrine Morell-Dubois1,2,3
1Univ. Lille, U1286-INFINITE-Institute for Translational Research in Inflammation, Lille, France.
Journal of scleroderma and related disorders
|June 24, 2024
概括
系统性硬化症患者报告的美学损伤比健康人群更大. 这种感知与心理因素和特定疾病的表现有关,例如面部和手部的参与.
科学领域:
- 类风湿病学 类风湿病学
- 皮肤病学 皮肤病学
- 心理学 心理学 心理学
背景情况:
- 系统性硬化症是一种影响身体形象的纤维性疾病.
- 在全身性硬化症中对身体图像感知的数据有限.
- 优化患者护理需要理解美学损害.
研究的目的:
- 评估系统性硬化症患者对健康对照组的美学损伤感知,使用视觉美学评估尺度.
- 探索系统性硬化症患者的审美障碍感知与临床,心理,生活质量和功能参数之间的相关性.
主要方法:
- 一项涉及88名全身性硬化症患者和88名健康对照者的比较研究.
- 使用视觉美学评估尺度来衡量感知到的美学障碍.
- 与标准化问卷和临床/心理评估相关的等级得分.
主要成果:
- 系统性硬化症患者的审美感知明显低于对照组 (p=0.028).
- 较差的感知与焦虑,抑郁症状,面部参与和痕相关.
- 审美评价尺度得分与适应的外观满意度调查问卷保持一致.
结论:
- 审美评价尺度是评估系统性硬化症患者身体形象的实用工具.
- 心理和生活质量因素显著影响这些患者的身体形象感知.
- 审美障碍是系统性硬化症的一个复杂问题,受疾病活动和心理状态的影响.
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