确定改善乳腺癌手术患者信息和支持的研究优先事项:英国以患者为中心的优先设定项目
Emma Johnston1, Katherine Cowan2, Mairead MacKenzie3
1Patrick G Johnston Centre for Cancer Research, Queen's University Belfast, 97 Lisburn Road, Belfast, BT9 7AE, UK.
Breast cancer research and treatment
|June 24, 2024
概括
患有乳腺癌经验的患者确定了改善乳腺癌手术期间信息和支持的十大研究重点. 关键领域包括知情决策,量身定制的康复支持和公平获得治疗选择.
科学领域:
- 在瘤学瘤学.
- 患者为中心的护理
- 医疗服务研究 医疗服务研究
背景情况:
- 乳腺癌手术需要全面的患者信息和支持.
- 现有的支持可能无法充分解决患者的需求和不确定性.
- 确定以患者为导向的研究优先事项对于改善护理至关重要.
研究的目的:
- 为提高英国乳腺癌手术患者的信息和支持制定十大研究重点.
- 让有过乳腺癌经验的人参与确定研究议程.
- 确保研究直接解决患者在信息和支持方面的需求.
主要方法:
- 利用强大的共识方法,包括对患者提交的不确定性的专题分析.
- 进行了两轮的Delphi在线调查,对患有乳腺癌的人进行了调查.
- 举办了面对面的优先级工作坊,最终确定了前十大研究重点.
主要成果:
- 来自156名患者/护理人员的543个不确定性被精制成63个调查问题.
- 在两个德尔菲轮比赛中,获得了高参与率 (80.2%).
- 首要任务集中在明智决策,量身定制的康复支持和公平获得治疗,包括逆侧乳房切除术.
结论:
- 一个共识驱动的前10名研究优先事项清单已经建立为乳腺癌手术信息和支持.
- 这些优先事项将指导未来的研究,以改善患者护理和结果.
- 进一步的研究对于解决这些确定的患者需求至关重要.
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