用户对健康数据的偏好和需求 采集数据使用研究 电子数据采集:调查研究 调查研究
Hiral Soni1, Julia Ivanova1, Hattie Wilczewski1
1Doxy.me Research, Doxy.me Inc, Charleston, SC, United States.
JMIR medical informatics
|June 25, 2024
概括
REDCap (研究电子数据捕获) 是收集健康数据的有价值工具,用户报告其高准确性和可靠性. 建议对调查开发和用户体验进行改进,以满足不断变化的技术需求.
科学领域:
- 临床研究信息学
- 健康数据管理 管理健康数据
- 调查方法 调查方法
背景情况:
- 基于网络的调查问卷对于研究中的健康数据收集至关重要.
- REDCap (研究电子数据捕获) 是一个广泛使用的电子数据捕获安全平台.
- 对REDCap电子数据收集的利益相关者的需求尚未得到充分研究.
研究的目的:
- 调查REDCap的研究人员和管理人员,了解他们的经验.
- 评估REDCap作为数据收集工具的优势,挑战和潜在改进.
主要方法:
- 一个基于网络的调查分发给美国的REDCap用户.
- 收集的数据包括受访者人口统计,数据质量,患者体验和开放式反.
- 使用描述性和推断性统计数据分析了定量数据;使用专题分析分析了定性数据.
主要成果:
- 207名受访者报告说,REDCap数据的高准确性 (90.8%),可靠性 (87.9%) 和完整性 (80.2%).
- 大多数患者发现REDCap易于使用 (79.7%),能够独立完成任务 (72.9%),并及时完成任务 (78.7%).
- 关键主题包括用户体验 (大多数优势),调查开发 (大多数挑战和改进建议).
结论:
- REDCap是临床研究数据收集的有价值,安全和具有成本效益的资源.
- 患者和工作人员对REDCap的体验总体上是积极的.
- 有机会增强REDCap的界面和功能,使其与现代数据收集技术保持一致.
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