在非口语自闭症和复杂的沟通需求中比较和对比增强型替代性沟通使用的障碍:多利益相关方的观点
Shu H Yau1,2, Kaylynn Choo1, Jane Tan1
1School of Psychology, Murdoch University, Perth, WA, Australia.
Frontiers in psychiatry
|June 26, 2024
概括
对增强型替代通信 (AAC) 设备的大量放弃限制了自闭症患者的参与. 这项研究确定了家长,教育工作者和临床医生的共同障碍,强调需要更好的合作来改善AAC支持并减少设备弃用.
科学领域:
- 辅助技术 辅助技术 辅助技术
- 自闭症谱系障碍 自闭症谱系障碍
- 通信科学 通信科学
背景情况:
- 增强型替代沟通 (AAC) 系统对于言语或非言语自闭症患者以及那些有复杂沟通需求的人来说至关重要.
- 虽然AAC可以改善沟通和生活质量,但高放弃率阻碍了社会参与.
- 从多个角度了解障碍对于有效实施AAC至关重要.
研究的目的:
- 从多个利益相关者的角度 (家长护理人员,教育工作者,临床医生) 探索AAC使用的障碍.
- 在这些利益相关者群体之间对感知障碍的相似性和差异进行定性分析.
- 确定改善AAC支持和减少放弃的战略.
主要方法:
- 对西澳大利亚的30名家长,护理人员,教育工作者和临床医生进行了半结构化采访和聚焦小组.
- 利用反射主题分析来分析定性数据.
- 确定了17个子主题,合并为所有利益相关者共同的五个主要主题.
主要成果:
- 五个常见的障碍主题出现了:利益相关者的知识,态度和耻辱,资源,AAC用户参与和设备适应.
- 确定了对比的观点,包括耻辱差异 (家长与临床医生) 和资源/知识差距 (家长与临床医生/教育工作者).
- 突出了临床医生沟通的缺乏,影响了AAC设备在学校环境中的适用性.
结论:
- 解决共同和不同的利益相关者障碍对于改善AAC支持至关重要.
- 澳大利亚卫生服务需要加强利益相关者之间的合作和能力建设.
- 建议包括沟通合作伙伴培训,以减少AAC放弃和改善自闭症患者的结果.
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