家长经历照顾孩子后的严重疾病:一个定性研究
Lenora M Olson1, Grace N Perry2, Serena Yang2
1Department of Pediatrics, Division of Critical Care, University of Utah, Salt Lake City, Utah, United States.
父母在孩子出生后适应生活时面临重大挑战.
科学领域:
- 儿科重症监护医药 儿科重症监护医药
- 家庭为中心的护理.
背景情况:
- 儿科重症给家庭带来了独特的挑战.
- 过渡家庭需要显著的父母适应.
研究的目的:
- 描述父母在孩子患重病后的经历.
- 在这个过渡期间,确定对父母来说重要的关键结果.
主要方法:
- 与26名患有重症儿童的家长进行了半结构化采访.
- 专注于神经和呼吸系统诊断.
- 儿童在出院时大多年龄在5岁以下.
主要成果:
- 家长们表示,他们对混乱的家庭过渡感到不准备.
- 家庭每天与医疗保健提供者,雇主和保险公司进行谈判.
- 长期的适应包括专注于孩子的能力,并建立一个"新规范".
结论:
- 医疗保健提供者需要更好地了解家庭在儿科重症后的经历.
- 改善家庭准备对于更顺的医院到家庭过渡至关重要.
- 支持家庭增强了他们管理持续护理需求的能力.
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