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像我这样的患者和皮肤病学在线患者支持社区
Mindy D Szeto1, Michelle Hook Sobotka2, Emily Woolhiser3
1Department of Dermatology, University of Minnesota Medical School, Minneapolis, MN, United States.
JMIR dermatology
|June 26, 2024
概括
像PatientsLikeMe (PLM) 这样的在线患者平台将患有健康状况的个人联系起来. 然而,用户可能不代表一般患者群体,引发了对错误信息和概括性的担忧.
科学领域:
- 医疗信息学 医疗信息学
- 社会媒体在医疗保健中的作用
- 患者参与技术的技术
背景情况:
- 在线平台促进了患者体验分享和社区建设.
- 像PatientsLikeMe (PLM) 这样的平台越来越多地被各种疾病患者使用.
研究的目的:
- 评估在线患者社区的代表性.
- 确定健康信息的概括性和传播的潜在局限性.
主要方法:
- 分析用户人口统计和来自在线患者平台的自我报告数据.
- 与更广泛的患者群体数据进行比较评估.
主要成果:
- 在线患者社区可能不准确地反映了一般患者群体.
- 共同经验和数据的有限概括性是一个重大问题.
结论:
- 在线患者平台的知情使用至关重要.
- 医疗保健提供者的参与是必要的,以减轻与错误信息相关的风险,并确保准确的健康指导.
关键词:
在 PLM PLM 中.像我这样的病人亚托邦性皮肤炎的发生.社区参与 社区参与人口统计数据 人口统计数据讨论板讨论板讨论板在论坛,论坛上.互联网互联网互联网互联网互联网互联网经验是生活的经验,是经验的经验.错误的信息 错误的信息在线支持社区在线支持社区.患病率的流行情况.代表性 代表性的代表性社交媒体 社交媒体更多相关视频
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