儿童在接受癌症护理和治疗时对他们的价值观和道德困境的声音 - - 一个定性访谈研究研究
Charlotte Weiner1,2, Pernilla Pergert3,4, Anders Castor5
1Childhood Cancer Research Unit, Department of Women's & Children's Health, Karolinska Institutet, Stockholm, Sweden. charlotte.weiner@ki.se.
BMC medical ethics
|June 26, 2024
概括
接受癌症治疗的儿童重视个人关系,面临着关于他们的福祉和治疗需求的道德困境. 了解这些价值观是为儿童癌症护理提供伦理支持的关键.
科学领域:
- 儿科瘤学 儿科瘤学
- 儿童癌症护理中的生物伦理学
- 儿童心理学和儿童福祉
背景情况:
- 在瑞典,儿童癌症每年影响大约350名儿童,造成危及生命的挑战.
- 儿童癌症患者的治疗过程经常涉及道德上具有挑战性的情况.
- 识别儿童的价值观和道德困境对于开发针对癌症护理的有针对性的伦理支持至关重要.
研究的目的:
- 探索和理解接受癌症治疗的儿童所拥有的核心价值观.
- 识别和分析儿科癌症患者在治疗期间遇到的道德困境.
主要方法:
- 一项使用实证数据内容分析的定性研究.
- 通过三次重点小组采访和六次个人采访收集的数据,其中包括16名在瑞典接受癌症治疗的儿童 (年龄为10-18岁).
- 获得瑞典伦理审查机构的道德认可,确保自愿参与与同意/同意.
主要成果:
- 五个关键的价值主题出现了:个人关系,身体的舒适和身份,感觉控制和参与,积极的分心,和需要的正确的护理.
- 道德困境被分为:我应该考虑别人还是不应该考虑别人? 我应该休息还是不应该休息? 我应该拒绝治疗还是不应该?
- 孩子们渴望与医疗保健专业人员建立个人关系,并努力平衡他们的福祉与治疗需求和他人的价值观.
结论:
- 接受癌症治疗的儿童优先考虑与医疗保健提供者的个人联系.
- 道德困境源于个人福祉,外部期望和必要的治疗之间的冲突.
- 进一步的研究对于开发有效的策略来解决儿科癌症护理中的道德困境至关重要.
相关概念视频
Nursing Ethical Principles II
951
Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
951
Ethical Issues
902
Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
Ethical Concerns in Healthcare:
902
Ethical Dilemmas I
871
Ethical dilemmas in nursing are of utmost importance, as they often arise from the tension between adhering to core ethical principles and the practical realities of healthcare delivery. These dilemmas require nurses to navigate complex situations where competing ethical considerations pull them in different directions.
Let us explore some examples to understand the potentially complex moral decisions nurses face.
Take the case of caring for minors, particularly in areas related to reproductive...
Let us explore some examples to understand the potentially complex moral decisions nurses face.
Take the case of caring for minors, particularly in areas related to reproductive...
871
Ethical Dilemmas II
985
Resolving an ethical dilemma in healthcare involves a systematic approach that considers every aspect of the issue, respecting both the patient's needs and values and the healthcare professional's ethical obligations. Here are potential steps to resolve an ethical dilemma:
985
Ethics and Bioethics
1.3K
Ethics is a philosophical study of moral actions. Ethics attempts to determine what is valuable for individuals and society. It examines the rational justification of moral judgments and analyzes what is morally just, fair, and right. Bioethics is a sub-discipline of applied ethics that analyzes the philosophical, social, and legal issues in life sciences and medicine. Ethical theories serve as a foundation for decision-making and represent the viewpoints from which people seek direction. They...
1.3K
Professional Values
6.6K
Nurses are responsible for caring for patients during birth, death, illness, and healing. Professional values guide the decisions and actions that nurses make in their careers. If nurses know the decisions and actions to take, providing patients with exceptional care is possible.
The values that are the foundation of the nursing profession are altruism, autonomy, human dignity, and social justice.
First, altruism refers to the concern for the welfare and well-being of others without personal...
The values that are the foundation of the nursing profession are altruism, autonomy, human dignity, and social justice.
First, altruism refers to the concern for the welfare and well-being of others without personal...
6.6K


