北欧对患者在线记录访问和欧洲健康数据空间的观点
Maria Hägglund1,2, Anna Kharko1,3, Annika Bärkås1
1Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Journal of medical Internet research
|June 27, 2024
概括
北欧国家在在线患者记录访问 (ORA) 中处于领先地位. 欧洲卫生数据空间 (EHDS) 提案旨在实现统一访问,但要有效实施,需要对ORA关键原则进行更多研究.
科学领域:
- 医疗信息学 医疗信息学
- 公共政策 公共政策
- 社会科学 社会科学 社会科学
背景情况:
- 在线记录访问 (ORA) 已经广泛普及,北欧国家和美国是先驱.
- 可访问的,结构化的健康数据在国际上被政策制定者认为至关重要.
- 目前在欧洲范围内ORA的实施是分散的,需要采用统一的方法.
研究的目的:
- 分析欧洲卫生数据空间 (EHDS) 提案对推进ORA的影响.
- 通过北欧患者电子健康 (NORDeHEALTH) 项目的透视来探索ORA的关键原则.
- 为成功实施EHDS和公平的患者ORA确定研究需求.
主要方法:
- 在EHDS提案中对政策变化的跨学科分析.
- 利用大规模国际NORDeHEALTH项目调查患者ORA.的发现.
- 确定和检查ORA的五个核心原则:访问权限,代理访问,患者数据输入,错误纠正和访问控制.
主要成果:
- 预计EHDS提案将促进患者访问和控制其电子健康记录.
- 已经确定了有效的ORA的五个关键原则:访问,代理访问,患者数据输入,错误纠正和访问控制.
- 虽然NORDeHEALTH项目提供了有价值的数据,但在确定的ORA原则方面仍然存在重大知识差距.
结论:
- 该EHDS提案为欧盟范围内的标准化ORA提供了一个框架,促进了患者的赋权.
- 对已确定的ORA原则进行进一步的研究证据对于成功实施EHDS至关重要.
- 解决知识差距至关重要,以确保所有欧洲公民能够公平有效地在线获得健康数据.
相关概念视频
01:11Purpose of Health Records I
1.2K
The vital purpose of health records is to provide a complete and accurate account of a patient's medical history, including communication, diagnostic and therapeutic orders, care planning, research, and quality review.
Here's a breakdown of how health records serve these purposes:
Here's a breakdown of how health records serve these purposes:
1.2K
01:19Purpose of Health Records II
964
Health records serve various essential purposes in the healthcare system. Here are some key purposes:
964
01:23Ethical Standards II
660
Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
660
01:25Ethical Standards I
791
The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
791
01:06Legal Guidelines for Documentation
1.3K
The legal guidelines for nursing documentation are essential for ensuring accurate, professional, and ethical recording of patient care. The guidelines are discussed here:
1.3K
01:19Standards of Care II
640
Nurses bear specific legal responsibilities under several federal statutes, including:
640