患者门户无法收集有关其他参与患者护理的人的结构化信息
Liz Salmi1, Danielle Peereboom2, David A Dorr3
1Department of General Medicine, Beth Israel Deaconess Medical Center, Boston, MA, United States.
Journal of medical Internet research
|June 27, 2024
概括
家庭护理伙伴往往缺乏医疗保健系统的支持. 目前的患者门户访问方法很困难,导致隐私风险和基本护理协调的解决方案.
科学领域:
- 医疗信息学 医疗信息学
- 患者参与 患者参与
- 数字健康数字健康
背景情况:
- 美国医疗保健系统不充分支持家庭或朋友的护理伙伴.
- 患者对个人健康信息门户网站的使用正在增加.
- 目前用于共享门户访问的技术未得到充分利用,且复杂.
研究的目的:
- 检查患者和护理伙伴对健康信息门户网站的访问方面的挑战.
- 突出需要改进支持共享访问的系统.
- 强调护理伙伴参与数字健康的重要性.
主要方法:
- 对共享门户访问现有技术的分析.
- 纳入患者和护理伙伴的个人叙述.
- 讨论"自己做"访问和医疗保健系统责任之间的冲突.
主要成果:
- 共享访问功能通常是有限的或难以使用的,导致解决方案.
- 许多护理伙伴使用患者凭证,冒着隐私和自主权的风险.
- 目前的系统未能充分支持护理伙伴的关键角色.
结论:
- 电子健康记录供应商和医疗保健组织必须改进共享访问功能.
- 护理合作伙伴应该被认可和支持,作为独特的,医疗技术的基本用户.
- 精简,安全的共享访问对于数字时代有效的以患者为中心的护理至关重要.
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