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从转诊支气管肺功能障碍症计划出院后,儿童的结果
Katharine P Callahan1,2,3, Kathryn Farrell4, Kathleen Gibbs5,4
1Division of Neonatology, Children's Hospital of Philadelphia, Philadelphia, PA, USA. callahankp@chop.edu.
概括
患有严重支气管肺功能障碍 (BPD) 的儿童面临着重大的健康和发育挑战. 这些疾病影响生活质量,随着时间的推移,发育问题变得越来越突出.
科学领域:
- 儿科肺病学 儿科肺病学
- 新生儿科学 新生儿科学
- 儿童发展 儿童发展
背景情况:
- 支气管肺功能障碍症 (BPD) 是婴儿的慢性肺部疾病.
- 严重的BPD需要专门的四级护理.
- 严重的BPD的长期结果尚未完全理解.
研究的目的:
- 描述严重BPD儿童的健康,发育和生活质量.
- 评估从四级BPD转诊计划中出院的儿童的结果.
- 确定疾病和生活质量之间的相关性.
主要方法:
- 横截面研究设计. 截面研究设计.
- 通过电话采访282个家庭.
- 18个月至11岁的儿童患有严重的BPD.
主要成果:
- 呼吸道疾病很普遍;42%的人需要气管切除术.
- 发育性疾病是显著的,有97%需要个性化教育计划.
- 健康和生活质量与呼吸道疾病严重程度相关;随着时间的推移,发育问题恶化.
结论:
- 被转移到四级BPD计划的儿童经历了严重的呼吸道和发育性疾病.
- 结果表明疾病负担比以前报告的要大.
- 发育性疾病越来越多地影响了这一群体的生活质量.
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