在ADLIFE项目中,通过患者报告的结果措施和共享决策来设计,实施和分析患者赋权的可用性
Gokce B Laleci Erturkmen1, Natassia Kamilla Juul2, Irati Erreguerena Redondo3
1SRDC Software Research Development & Consultancy Corp, ODTU Teknokent Silikon Blok Kat, 1 No:16 Cankaya, Ankara, 06800, Turkey. gokce@srdc.com.tr.
BMC medical informatics and decision making
|June 29, 2024
概括
在ADLIFE项目中,开发了一个用于慢性疾病管理的数字健康平台,整合了患者报告结果测量和共享决策. 可用性研究显示了用户的积极反,为临床试点测试做好了准备.
科学领域:
- 数字健康数字健康
- 患者赋权是患者赋权的一种方式.
- 慢性疾病管理 慢性疾病管理
背景情况:
- 该ADLIFE项目专注于针对COPD和心力衰竭等严重的长期疾病的数字健康解决方案.
- 有效的管理需要患者的自我管理和参与,需要患者-提供者合作伙伴关系.
- 综合护理系统应该支持自我管理,共享决策,PROM,教育和后续行动.
研究的目的:
- 设计,实施和评估慢性疾病管理的患者赋权过程.
- 将患者报告结果测量 (PROM) 和共享决策 (SDM) 整合到数字健康平台中.
- 通过多站点研究来评估ADLIFE数字工具箱的可用性.
主要方法:
- 一种基于结果的,以患者为中心的方法,使用11个标准化的PROM.
- 通过专门的数字平台实施SDM的"SHARE方法".
- 使用HL7 FHIR互操作性标准集成PROM和SDM.
- 一项涉及3个临床场所20名用户的可用性研究.
主要成果:
- 阿德莱夫患者赋权平台 (PEP) 获得了积极的用户反,平均满意度得分高于6/9.
- 用户发现该平台易于使用,这表明了整体的积极反应.
- 在临床试点研究之前,发现了缺陷,并优先进行更新.
结论:
- 使用PROM和SDM的ADLIFE患者赋权机制已经完成,并准备进行临床试点.
- 数字工具箱已经根据可用性研究的反进行了更新.
- 临床研究计划在多个欧洲国家和以色列的六个医疗机构进行.
相关概念视频
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