了解自闭症及其治疗:孩子的视角
Yael Karni-Visel1, Nehami Baum1, Mitchell Schertz2
1The Louis and Gabi Weisfeld School of Social Work, Bar Ilan University, Ramat Gan, Israel.
Social science & medicine (1982)
|June 29, 2024
概括
患有自闭症谱系障碍 (ASD) 的儿童认识到他们的挑战,但往往不了解他们的诊断或治疗目标. 研究结果强调,需要在讨论有关自闭症儿童的护理时包括自闭症儿童.
科学领域:
- 儿科心理学 儿科心理学
- 发育神经科学的发展神经科学.
- 临床儿童心理学 临床儿童心理学
背景情况:
- 关于自闭症谱系障碍 (ASD) 儿童对他们的需求和挑战的看法的研究有限.
- 现有的研究主要集中在家长和专业人士的观点上.
研究的目的:
- 调查ASD儿童如何感知他们的情况.
- 了解有自闭症儿童对干预目标的理解.
主要方法:
- 对19名被诊断患有ASD的儿童和青少年 (年龄为5.7-14.2岁) 进行了定性采访.
- 使用直接和投射性的开放式问题来探索对强项,挑战和新型ASD治疗的看法.
- 采用了对采访数据和提取的医疗记录的解释性内容分析.
主要成果:
- 孩子们讨论了体现的感觉,感情和"正常"与"残疾"的概念.
- 对于自闭症诊断和症状的认识有很大的差异;大多数孩子不明白他们教育或治疗干预的目标.
- 只有一个参与者明确地命名了他们的诊断,并详细说明了其后果.
结论:
- 患有自闭症的儿童意识到他们独特的情绪和行为困难.
- 他们经常被排除在患者信息流程之外,并且缺乏对干预目标的理解.
- 需要适当的发育方法来让患有自闭症的儿童参与讨论他们的病情和治疗方法.
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