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开发以患者为中心的护理途径 对于视网母细胞瘤患者:混合方法试点研究
Ivana Ristevski1,2,3, Kaitlyn Flegg4,5,6, Mawj Al-Hammadi4,5,6
1Department of Ophthalmology & Vision Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada, ivana.ristevski@sickkids.ca.
Oncology
|July 2, 2024
概括
视网母细胞瘤旅程地图 (Retinoblastoma Journey Map) 是一个共同设计的视网母细胞瘤护理途径,对于护理人员来说,它被证明是可用的和可行的. 一个意想不到的好处是它用于"遗产建设",记录孩子的治疗之旅.
科学领域:
- 儿科瘤学 儿科瘤学
- 医疗保健服务研究 医疗服务研究
- 以患者为中心的护理
背景情况:
- 视网母细胞瘤的治疗是复杂的和患者特异性的.
- 护理途径可以改善结果,安全和资源使用.
- 开发一种视网膜母细胞瘤治疗途径是社区的优先事项.
研究的目的:
- 共同设计和试点"视网膜母细胞瘤旅程地图",为患有视网膜母细胞瘤的儿童的护理人员提供护理途径.
- 评估地图的可行性,可接受性和可用性.
- 评估地图对沟通,自我效能,焦虑,抑郁和医生与患者互动的影响.
主要方法:
- 以人为中心的设计是由一个由患者,卫生专业人员和研究人员组成的工作组使用的.
- 护理人员通过混合方法数据收集评估了视网母细胞瘤旅程图.
- 数据侧重于可行性,可接受性,可用性和感知影响.
主要成果:
- 视网母细胞瘤旅程地图是一份带有25个儿童友好的贴纸的插图路线图.
- 定量分析表明,该地图是可行的,可接受的和可用的.
- 没有观察到对沟通,自我效能,焦虑,抑郁或医生患者互动的显著影响.
结论:
- 共同设计的视网母细胞瘤旅程图是可用的,可接受的,可行的护理人员.
- "遗产建设"家庭记录他们孩子的护理途径成为一个关键的意外用途.
- 进一步的研究可能会探索优化地图以提高沟通和支持.
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