建立沙特儿科和青少年糖尿病登记:初步数据和挑战
Mohammed Al Dubayee1,2,3, Fahad Al Juraibah1,2,3, Haifa Alfaraidi1,2,3
1King Saud Bin Abdulaziz University for Health Sciences, Ministry of National Guard Health Affairs, Riyadh, Saudi Arabia.
Sudanese journal of paediatrics
|July 2, 2024
概括
沙特儿科和青少年糖尿病登记 (SPYDR) 成功启动,注册了2,344名儿童和青少年. 最初的数据显示,1型糖尿病是最常见的,COVID-19等挑战影响了其发病.
科学领域:
- 内分泌学 在内分泌学.
- 儿科 儿科 儿科
- 公共卫生 公共卫生
背景情况:
- 沙特国家糖尿病登记处主要为成年人提供服务.
- 国家卫队卫生管理局 (NGHA) 在2020年建立了沙特儿科和青少年糖尿病登记处 (SPYDR).
- SPYDR旨在收集沙特阿拉伯糖尿病儿童和青少年的数据.
研究的目的:
- 报告SPYDR.收集的初始数据.
- 识别和解决在注册表启动过程中遇到的挑战.
- 在沙特阿拉伯建立一个用于儿科糖尿病研究的基础设施.
主要方法:
- 用ICD-10代码从NGHA电子病历中提取患者数据.
- 经过培训的协调员验证了诊断并输入了数据;经验丰富的内分泌学家验证了样本.
- 数据分析包括人口统计,糖尿病亚型,持续时间,控制和并发症.
主要成果:
- 招募了2,344人,诊断时的平均年龄为9.08岁.
- 1型糖尿病 (T1D) 占病例的91.3%,而2型糖尿病 (T2D) 占6.4%.
- 平均HbA1c为10.45%,糖尿病的平均持续时间为5.31年. 关键的挑战包括COVID-19大流行,数据验证和中心参与.
结论:
- 尽管面临挑战,但SPYDR的初始阶段已经成功完成.
- 该注册证实T1D是沙特阿拉伯儿童糖尿病的主要形式.
- SPYDR为儿童糖尿病的数据共享和协作研究提供了基础.
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