对于长期患有多发性硬化症的老年人来说,健康的意义
Alexa K Stuifbergen1, Heather Becker1, Nani Kim1
1The University of Texas at Austin School of Nursing, Austin, Texas, USA.
Research in nursing & health
|July 2, 2024
概括
患有多发性硬化症 (MS) 的人通过健康镜头来看待健康,专注于日常功能和适应,而不仅仅是临床措施. 这种观点会随着时间的推移影响他们的健康行为.
科学领域:
- 老年学是指老年学的学科.
- 神经学 神经学
- 健康心理学 心理健康心理学
背景情况:
- 了解患有慢性疾病的老年人群对健康的看法对于以人为中心的护理至关重要.
- 多发性硬化症 (MS) 给个体带来独特的挑战,随着年龄的增长,影响他们的健康和生活质量.
研究的目的:
- 探索多发性硬化症 (MS) 患者如何描述他们的健康状况及其在26年时间内的变化.
- 调查健康定义,健康行为和MS老年人的生活质量之间的关系.
主要方法:
- 从1996年 (第1年) 到2022年 (第26年) 收集的168名多发性硬化症患者的纵向调查数据.
- 测量包括对健康的感知意义,自我评估健康,健康行为和生活质量结果.
- 分析26年来健康观念和行为的变化,在一个平均年龄为70.13岁的队列中.
主要成果:
- 60%的参与者在2022年将他们的整体健康状况评为好或优秀,随着时间的推移,自我评价没有显著下降.
- 参与者始终倾向于以健康为导向的健康定义,而不是临床/生物医学模型.
- 健康的健康定义与健康行为正相关,而临床定义显示了负相关性.
结论:
- 患有多发性硬化症的老年人优先考虑以健康为导向的健康观,强调日常功能和适应.
- 对MS患者的健康促进策略应侧重于与功能能力和生活调整产生共的信息.
- 一种以健康为重点的健康信息传递方法可能会增强那些患有多发性硬化症的老年人的健康行为参与.
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