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发展和验证的失禁障碍指数-伴侣 (DHI-C) 的发展和验证
Alice Silbergleit1, Ramya Konnai2, Lonni R Schultz3
1Division of Speech-Language Sciences and Disorders, Department of Neurology, Henry Ford Health, 6777 West Maple Road, West Bloomfield, MI, 48322, United States. Asilber1@hfhs.org.
Dysphagia
|July 2, 2024
概括
这项研究开发了一种新工具,用于测量吞困难对护理人员的影响. 这些发现突显了食障碍对伴侣的重大负担,为更好的患者和护理人员支持提供了信息.
科学领域:
- 语音和听力科学 语言和听力科学
- 生活质量研究 研究 生命质量研究
- 心理测量 心理测量 心理测量
背景情况:
- 缺食症显著影响患者的生活质量,造成社会和心理痛苦.
- 对护理人员的心理社会影响的理解较少.
- 现有的措施不能充分捕捉护理人员对失调的影响的观点.
研究的目的:
- 开发一种临床效率高,统计学上可靠的同伴报告结果测量方法.
- 评估患者的消化障碍对他们的伴侣在身体,情绪和功能领域的影响.
- 通过关注护理人员负担来补充失调障碍指数 (DHI).
主要方法:
- 最初的开发涉及77个陈述,分为物理,情感和功能子尺度.
- 陈述给了75个伴侣的个人与失症.
- 评估了内部一致性 (克朗巴赫的α) 和测试复试可靠性 (ICC). 最后的25项问卷在317个伴侣和31个对照中得到了验证.
主要成果:
- 最后的25项问卷显示出强大的内部一致性 (克朗巴赫的α=0.97).
- 对于患有食障碍的个体和对照组的伴侣反应之间发现了显著的差异.
- 测试重复测试的可靠性很强 (所有ICC>0.85).
结论:
- 已经开发了一个统计验证的伴侣报告结果测量器来测量缺食症.
- 这一工具增强了对缺食症对护理人员的全球影响的理解.
- 该措施可以指导治疗策略,以改善患者及其同伴的吞结果和整体生活质量.
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