长期POTS结果调查:诊断,治疗和临床结果
Jeffrey R Boris1, Edward C Shadiack2, Elizabeth M McCormick3
1Jeffrey R. Boris, MD LLC Moylan PA USA.
Journal of the American Heart Association
|July 3, 2024
概括
姿势静止性心拍综合征 (POTS) 显著影响生活质量,大多数患者经历了慢性多系统问题. 早期诊断和量身定制的疗法至关重要,因为POTS很少自发地消失.
科学领域:
- 心脏病学 心脏病学
- 神经学 神经学
- 儿科 儿科 儿科
背景情况:
- 对于患有姿势正静心动综合征 (POTS) 个体的长期结果,数据有限.
- 一个儿科POTS临床计划启动了一个电子问卷来评估患者的结果.
研究的目的:
- 评估在单中心儿科计划中诊断和治疗POTS的患者的长期结果.
- 收集有关生活质量,症状,疗法和社会影响的数据.
主要方法:
- 长期POTS结果调查 (LT-POTS) 对227名在18岁之前被诊断患有POTS的患者进行.
- 收集的数据包括生活质量,症状患病率/严重程度,治疗疗效,教育,就业和社会影响.
主要成果:
- POTS是一种慢性疾病,99%的患者报告持续症状,尤其是女性.
- 生活质量受到中度损害,能量和一般健康受到显著限制.
- 诊断延迟很常见,许多患者经历了症状的消除;药物被认为比非药物干预更有效.
结论:
- 姿势静止性心拍综合征 (POTS) 是一种慢性,残疾性疾病,涉及多系统.
- 虽然症状是可以修改的,自发的解决是罕见的.
- 加强提供者教育和患者自我倡导对于改善诊断成功和管理至关重要.
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