一个为患有慢性病的儿童创建的患者导航程序的随机对照试验 (NAVKIDS2)
Germaine Wong1, Chandana Guha2, Kylie-Ann Mallitt3
1Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia; Department of Renal Medicine, Westmead Hospital, Sydney, New South Wales, Australia.
Kidney international
|July 3, 2024
概括
患者导航器在患有慢性病 (CKD) 的儿童中没有改善自我评价的健康状况. 然而,护理人员报告说,在导航医疗保健系统和为他们的孩子提供护理方面,他们提高了技能.
科学领域:
- 儿科脏病学 儿科脏病学
- 医疗保健服务研究 医疗服务研究
- 患者导航 患者导航
背景情况:
- 患者导航员在复杂的医疗保健系统中协助成年人,改善获得和结果.
- 在儿科慢性病 (CKD) 患者群体中,患者导航的有效性尚未得到充分证实.
研究的目的:
- 评估患者导航计划对患有CKD的儿童自我评估健康 (SRH) 的影响.
- 评估二次结果,包括护理人员的SRH,医疗保健满意度,生活质量,住院治疗和错过的学校日.
主要方法:
- 一项多中心,随机对照试验将患有CKD1-5期的儿童 (0-16岁) 分配给立即或等候名单患者导航.
- 主要结局是六个月的儿童的SRH,使用治疗意图原则进行分析.
- 通过调查和半结构面试来评估次要结果和护理人员的经验.
主要成果:
- 在儿童的SRH中,在六个月的即时和等待名单组之间没有观察到显著的差异.
- 所有的次要结果,包括护理人员SRH,生活质量和医疗保健利用率,在各组之间没有显著差异.
- 护理人员确定了缓解心理压力的主题,促进了护理协调,并加强了提供护理的能力.
结论:
- 患者导航在患有慢性病的儿童中没有显著改善自我评估的健康状况.
- 护理人员从患者导航中受益,报告改善了管理孩子护理和获得医疗保健服务的技能.
- 进一步的研究可能会探索患者导航的特定组件,从而为儿科CKD患者带来更好的结果.
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