包括体肌肉炎功能评级表的测量属性
Sharfaraz Salam1, Tara Symonds2, Helen Doll2
1Department of Neuromuscular Diseases, University College London, London, UK.
Journal of neurology, neurosurgery, and psychiatry
|July 3, 2024
概括
包容性体肌炎功能评级表 (IBMFRS) 是一种可靠和有效的工具,用于评估IBM患者的身体功能. 在IBMFRS上下降2个点表明功能有意义的下降.
科学领域:
- 神经学 神经学
- 临床评估 临床评估
- 类风湿病学 类风湿病学
背景情况:
- 包括体肌炎 (IBM) 是一种罕见的,进展性神经肌肉疾病.
- 评估身体功能对于管理IBM和评估治疗疗效至关重要.
- 包括体肌肉炎功能评级表 (IBMFRS) 是这项评估的一个潜在工具.
研究的目的:
- 评估包括身体肌肉炎功能评级表 (IBMFRS) 的有效性,可靠性和响应性.
- 确定临床上有意义的IBMFRS分数变化值.
主要方法:
- 利用了IBM患者20个月多中心,随机,双盲,安慰剂对照试验的数据.
- 评估有效性 (融合和分辨),内部一致性 (克朗巴赫α) 和可靠性 (ICC,布兰德-阿尔特曼图).
- 使用标准化响应平均值 (SRM) 确定响应能力,并通过ROC曲线分析确定有意义的变化.
主要成果:
- 在IBMFRS证明了良好的收和区分的有效性 (斯皮尔曼r:0.42-0.79;SES:0.51-1.59).
- 内部一致性 (克朗巴赫α:0.79) 和测试重试可靠性 (ICC:0.84-0.87) 都非常出色.
- 该尺度对变化有反应 (SRM: -0.76至-1.57),下降2点意味着功能下降.
结论:
- IBMFRS是一种可靠,有效和响应快的仪器,用于评估IBM的物理功能.
- 经过培训的评级人员可以有效地管理IBMFRS,包括通过电话.
- 在IBMFRS得分下降2分代表了IBM患者身体功能临床上有意义的下降.
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