"没有帮助:"护理人员对青少年和患有深度自闭症的成年人服务需求的观点
Emily F Ferguson1, Miya L Barnett2, Jon W Goodwin2
1Division of Child and Adolescent Psychiatry, Department of Psychiatry and Behavioral Sciences, School of Medicine, Stanford University, 401 Quarry Rd, Stanford, CA, 94305-5719, USA. eferguso@stanford.edu.
Journal of autism and developmental disorders
|July 4, 2024
概括
患有深度自闭症的个体有未满足的服务需求,特别是在社会化和专业医疗保健方面. 护理人员强调缺乏个性化的服务和障碍,无法为患有深度自闭症的成年人获得适当的支持.
科学领域:
- 自闭症谱系障碍研究研究
- 护理人员的观点 护理人员的观点
- 服务交付改进 服务交付改进
背景情况:
- 深度自闭症在研究中代表性不足,导致服务需求的知识差距.
- 有限的基于证据的实践存在于需要24 / 7护理的个体.
- 护理人员的见解对于理解和解决服务差距至关重要.
研究的目的:
- 探索护理人员对深度自闭症服务需求的观点.
- 确定获得护理和治疗优先事项的障碍.
- 为制定量身定制的治疗方法和改善服务提供提供提供信息.
主要方法:
- 采用了一种连续的混合方法设计.
- 来自423名护理人员的定量调查数据.
- 对20名患有深度自闭症的青少年和成年人的照顾者进行了定性访谈.
主要成果:
- 大多数报告的未满足需求是社会化机会 (60.3%) 和接受自闭症培训的员工 (59.3%) 的初级医疗保健.
- 社会技能,生活技能指导和行为支持也是重要的未满足需求.
- 定性数据显示,缺乏个性化服务和护理障碍,强调需要协调成人服务.
结论:
- 在美国,青少年和成年人患有严重自闭症存在重大服务需求.
- 改善临床护理的可访问性和质量需要解决已识别的需求.
- 发展集中,协调的治疗环境是终身护理的优先事项.
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