父母照顾重病儿童经验的精神层面:采访研究
Marije A Brouwer1, Marijanne Engel2, Saskia C C M Teunissen1
1Julius Center for Health Sciences and Primary Care, (M.A.B, M.E, S.C.C.M.T, M.C.K), Center of Expertise in Palliative Care Utrecht, Department of General Practice and Nursing Science, University Medical Center Utrecht, Utrecht, The Netherlands.
Journal of pain and symptom management
|July 4, 2024
概括
照顾有生命危险的孩子的父母面临着重大的精神挑战. 他们的精神需求往往没有得到满足,这凸显了儿科息护理支持的差距.
科学领域:
- 儿科缓和护理 儿科缓和护理
- 在疾病中的灵性
- 家庭照顾 家庭照顾
背景情况:
- 患有危及生命的儿童的父母面临着复杂的个人,家庭和职业挑战.
- 预测孩子的丧失和管理医疗护理为这些父母创造了独特的需求和潜在的护理需求.
- 本研究从父母的角度探讨了照顾者的精神层面.
研究的目的:
- 探索照顾患有危及生命的儿童的精神层面.
- 了解父母在这种情况下的精神经验和需求.
主要方法:
- 进行了一项探索性定性研究.
- 与0-21岁儿童的父母进行了深入采访,这些儿童患有危及生命的疾病.
- 面试成绩单进行了主题分析.
主要成果:
- 24名家长参与了这次活动,他们反思了孩子的病情.
- 灵性是他们经验的关键,虽然经常隐藏的方面.
- 确定的主要精神领域包括身份,育儿,联系,目标调整,代理,导航信仰和决策.
结论:
- 精神层面是父母体验的核心,但得到了不足的支持.
- 父母的精神照顾需求经常被忽视.
- 高质量的儿科息护理必须涉及各种精神经验,支持失去和增长和意义的来源.
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