在与患有ALS的父母生活时,青少年充满挑战和悲伤的过渡:一种定性解释性研究
Nina Malmström1, Joakim Öhlén2, Birgitta Jakobsson Larsson3
1Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Social science & medicine (1982)
|July 6, 2024
概括
青少年与患有肌缩性侧面硬化症 (ALS) 的父母生活在一起,面临着情绪上的痛苦和增加的责任. 这种充满挑战的过渡会影响他们的发展,需要为他们的福祉提供有针对性的支持.
科学领域:
- 心理学 心理学 心理学
- 社会学 社会学 社会学
- 抚慰性护理是一种缓解性护理.
背景情况:
- 肌缩侧面硬化症 (ALS) 为家庭带来了独特的挑战.
- 青春期是身份形成和解放的关键时期.
研究的目的:
- 探索青少年的经历和意义的创造,他们的父母被诊断出患有ALS.
- 了解家长ALS对青少年发育的心理社会影响.
主要方法:
- 使用现象学解释学分析进行的定性研究.
- 在瑞典,深度采访了11名青少年 (8-25岁),他们与患有ALS的父母生活在一起.
- 在2020年12月至2022年4月期间收集的数据.
主要成果:
- 由于目睹父母的衰落,青少年经历了严重的情绪困扰,悲伤和难以管理的情绪.
- 增加的家庭责任和情感照顾角色导致了加速成熟和推迟个人追求.
- 家庭角色的转变和对家庭的高度依恋造成了生活不平衡,影响了青少年的自我意识.
结论:
- 与患有ALS的父母一起生活是一种充满挑战和悲伤的过渡,破坏了青少年的发展.
- 不平衡的生活状况可能会阻碍身份形成和解放,这对健康的成年至关重要.
- 早期,有针对性的支持对于这个脆弱群体来说至关重要,以确保他们的健康和福祉.
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