正常和富有同情心的护理:晚期癌症患者在最后一次在家的经历
Bardo Driller1,2,3, Carolin Maienborn4, Elin Margrethe Aasen5
1Department of Oncology, Møre and Romsdal Hospital Trust, Ålesund, Norway. bardo.driller@helse-mr.no.
BMC primary care
|July 6, 2024
概括
晚期癌症患者在息治疗期间优先考虑在家中保持正常状态. 提前护理计划 (ACP) 和富有同情心的医疗保健专业人员对于患者的福祉和控制至关重要.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 主要医疗保健是一级医疗保健.
背景情况:
- 癌症患者往往更喜欢在家进行息护理,以获得舒适和熟悉.
- 将预先护理计划 (ACP) 整合到初级医疗保健中,可以支持与患者愿望一致的终身护理 (EoL).
- 这项研究探讨了接受家庭息治疗和参与ACP的晚期癌症患者的经验.
研究的目的:
- 了解在家接受息治疗的晚期癌症患者的经历.
- 探讨这些患者在初级医疗保健机构中提前护理规划 (ACP) 的作用.
- 确定影响患者偏好和终身护理 (EoL) 的关键因素.
主要方法:
- 使用个人半结构面试进行的定性研究.
- 反思性主题分析,采用吸收式方法和潜伏层次的关注.
- 包括12名晚期癌症患者,预期寿命为3个月,并记录了ACP.
主要成果:
- 患者高度重视在家中保持正常和日常生活.
- 挑战包括管理退化和家庭护理人员的负担/价值.
- 富有同情心的医疗保健人员 (HCP) 对于建立信任和解决患者担忧至关重要.
- 提前护理计划 (ACP) 讨论虽然困难,但提供了确定性和控制的感觉.
结论:
- 在家中保持正常状态是晚期癌症患者的主要目标.
- 在初级医疗保健中,一致的专业沟通和护理对于建立信任至关重要.
- 对于临终期 (EoL) 患者来说,ACP和支持性初级保健促进了确定性和控制的感觉.
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