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在先天性腹膜的长期随访
Jessica C Pollack1, Laura E Hollinger2, Terry L Buchmiller3
1Le Bonheur Children's Hospital, University of Tennessee Health Science Center, USA; Division of Pediatric General, Thoracic, and Fetal Surgery, Children's Hospital of Philadelphia, USA.
Seminars in pediatric surgery
|July 7, 2024
概括
严重先天性隔膜 (CDH) 的幸存者面临长期的健康问题. 这一框架指导了专门的,多学科的后续行动,以改善这些复杂的儿科病例的结果.
科学领域:
- 儿科手术 儿科手术
- 新生儿科学 新生儿科学
- 发育儿科 发育儿科
背景情况:
- 初始护理的改善增加了严重先天性隔膜 (CDH) 的存活率.
- 这种不断增长的CDH幸存者人口经历了重大的长期挑战和多系统的不良结果.
- 专门的,多学科的随访对于管理干预后并发症至关重要.
研究的目的:
- 概述一个长期对先天性隔膜 (CDH) 患者的长期随访的一般框架.
- 为满足日益增长的CDH幸存者群体独特而复杂的需求.
- 引导早期识别和干预,以减轻发病率.
主要方法:
- 文献审查和当前最佳实践的综合.
- 制定一个多学科的后续框架.
- 确定CDH患者的关键结果领域.
主要成果:
- 提出了一个关于CDH患者随访的综合框架.
- 关注的重点领域包括心肺,胃肠道,神经发育和手术结果.
- 生活质量被确定为一个关键的结果指标.
结论:
- 专业的,多学科的护理对于CDH幸存者至关重要.
- 早期和持续的干预可以减轻长期的发病率.
- 这一框架支持CDH患者的优化长期管理.
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