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患有炎症性肠道疾病的患者真的知道他们被诊断出有哪些其他免疫媒介炎症疾病吗?
Ruth de Francisco1,2, Isabel Pérez-Martínez1,2, Andrés Castaño-García1
1Gastroenteroloy Department, Hospital Universitario Central de Asturias, Oviedo, Spain.
Journal of Crohn's & colitis
|July 9, 2024
概括
患有炎症性肠病 (IBD) 的患者对其他免疫媒介性炎症性疾病 (IMID) 的认识有限. 患者自我报告和医疗记录之间的一致性总体上是中等的,对于类风湿性IMIDs的一致性较低.
科学领域:
- 胃肠病学 胃肠病学
- 类风湿病学 类风湿病学
- 免疫学 免疫学 免疫学
- 皮肤病学 皮肤病学
- 内分泌学 在内分泌学.
- 眼科医生 眼科 眼科
背景情况:
- 炎症性肠病 (IBD) 经常与其他免疫媒介性炎症性疾病 (IMID) 相联系.
- 了解患者对这些共同存在的疾病的认识对于综合护理至关重要.
- 患有IBD的患者对其他IMIDs的知识程度尚未确立.
研究的目的:
- 评估IBD患者对同时存在的IMIDs的知识程度.
- 分析影响自我报告和医学确认IMID诊断之间一致性的因素.
- 确定IBD和其他IMID患者的一致性预测因子.
主要方法:
- 对1620名IBD患者进行了问卷调查,以收集54名IMID的自我报告诊断.
- 为了确认,IMID诊断与医疗记录进行了交叉引用.
- 后勤回归模型被用来评估一致性和各种患者因素之间的关联.
主要成果:
- 39%的IBD患者至少有另一个IMID,11%有两个或更多.
- 自我报告和医疗记录之间的总体一致性是中等的 (k=0.61).
- 对皮肤,内分泌和眼部IMIDs而言,一致性很大,但对于类风湿性IMIDs而言,只有适度. 女性性别与更高的一致性有关,而较低的教育和较晚的IMID诊断与较低的一致性有关.
结论:
- 患有IBD的患者对其同时存在的IMIDs,特别是类风湿性疾病的了解很差.
- 改善患者对IBD和其他IMID之间的关联的教育是有必要的.
- 诸如性别,教育水平和诊断时间等因素会影响患者对并发性IMIDs的认识.
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