交互式卫生技术工具用于活体捐赠者评估,以标准化知情同意过程:可用性和定性内容分析
Fernanda Ortiz1,2, Juulia Grasberger1,2, Agneta Ekstrand1,2
1Abdominal Center-Nephrology, Helsinki University Hospital, Helsinki, Finland.
JMIR formative research
|July 9, 2024
概括
交互式健康技术改善了脏活体捐赠者的知情同意. 数字护理路径教育了捐赠的候选人,帮助临床医生标准化该过程.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 移植 移植 移植 移植
- 医疗信息学 医疗信息学
背景情况:
- 缺乏关于切除术风险和对脏活体捐赠候选人的心理影响的标准化信息.
- 活体脏捐献涉及捐赠者固有的风险.
研究的目的:
- 评估交互式卫生技术在改善脏活体捐赠知情同意过程中的好处.
- 评估对脏捐赠候选人的数字护理路径的实用性.
主要方法:
- 利用脏中心门户和针对患者量身定制的数字护理路径 (活体捐赠者数字护理路径) 为脏活体捐赠候选人.
- 通过调查评估电子健康素养 (eHEALS),可用性 (SUS) 和系统实用性.
- 对开放式反进行了定性内容分析.
主要成果:
- 数字护理路径在技术上是令人满意的 (平均SUS分数为4.4) 并对捐赠过程教育有用.
- 电子健康素养与互联网用于健康决策的使用相关.
- 候选人发现的担忧主要集中在术后应对.
结论:
- 远程医疗有效地教育脏活体捐赠者候选人在捐赠过程中.
- 活体捐赠者数字护理路径是一个有价值的电子健康工具,用于标准化知情同意程序.
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