在怀孕24周之前出生的孩子的父母的挑战
Aldina Pivodic1,2, Malin Hansson3,4, Chatarina Löfqvist1,3
1Department of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Acta paediatrica (Oslo, Norway : 1992)
|July 10, 2024
概括
极度早产婴儿 (<24周妊娠期) 的父母面临的挑战包括满意度下降和疲劳. 长期,以家庭为中心的支持对婴儿发育和父母福祉至关重要.
科学领域:
- 新生儿护理和发育儿科.
- 父母的福祉和医疗保健经验.
背景情况:
- 极度早产的婴儿 (<24周妊娠期) 需要专门的长期护理.
- 父母的经验和儿童发展结果在这个群体中至关重要.
研究的目的:
- 评估家长的照顾经验,家长的幸福感和孩子的发展.
- 评估瑞典 (2007-2018) 极度早产婴儿<24周妊娠期出生的结果.
主要方法:
- 对家长进行了一项使用多个问卷调查.
- 在349名非常早产婴儿的家长中,有124名 (35.5%) 完成了调查.
主要成果:
- 父母报告了高的初始医疗保健满意度,在出院后下降,但仍然很高.
- 发现了显著的发育问题:84.3%的人符合疑似发育偏差的标准,55.6%的人患有回避性限制性食物摄入障碍,47.9%的人患有视觉感知问题.
- 尽管得到了强有力的社会支持,但父母却经历了严重的疲劳 (48.6%),30.6%的孩子获得了经济支持,37.9%的孩子获得了康复服务.
结论:
- 极度早产婴儿的父母面临着重大挑战,包括退院后满意度下降和持续的疲劳.
- 迫切需要全面的,以家庭为中心的支持系统.
- 对于这些家庭和儿童来说,长期的多专业后续护理是必不可少的.
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