对癌症患者适应性支持性护理系统的可用性和初步有效性:试点随机对照试验
Sharon H Baik1, Karen Clark1, Marisol Sanchez1
1Department of Supportive Care Medicine, City of Hope, Duarte, CA, United States.
JMIR cancer
|July 10, 2024
概括
PatientCareAnywhere,一种适应性支持性护理系统,在癌症患者中显著改善了与健康相关的生活质量 (HRQOL). 虽然可用性很高,但在这项初步研究中,自我有效性没有显著改善.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 患者支持系统 患者支持系统
背景情况:
- 开发了一个适应性,以患者为中心的支持性护理系统,PatientCareAnywhere,使用以用户为中心的设计.
- 旨在通过基于家庭的适应性支持,提高癌症患者的与健康相关的生活质量 (HRQOL) 和自我效能.
- 该系统提供生物心理社会查,教育,资源协调和安全通信.
研究的目的:
- 评估基于Web的PatientCareAnywhere系统的可用性.
- 检查PatientCareAnywhere在改善患者报告结果的初步疗效,与通常护理相比.
主要方法:
- 第一个阶段:在4名癌症患者和7名护理人员中进行可用性测试,采用采访和系统可用性量表.
- 第二阶段:为期3个月的试点随机对照试验,共72名患者 (36名干预,36名对照).
- 在基线和12周评估HRQOL和癌症相关的自我有效性.
主要成果:
- 用户满意度高,可用性高于平均水平 (SUS平均得分为84.09).
- 干预组的HRQOL显著改善 (平均差异6.08) 与对照组 (平均差异-2.95;P=.01) 相比.
- 两组之间自我疗效没有显著差异 (P=.09).
结论:
- "PatientCareAnywhere"是一个用户友好的,可接受的支持性护理干预措施,在改善癌症患者HRQOL方面具有初步有效性.
- 需要进一步的研究来证实疗效,增强用户参与度和优化干预参数.
- 强调数字健康解决方案在适应性癌症护理提供中的潜力.
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