患有复杂慢性疾病的儿童及其父母的健康疾病过渡过程:范围审查
David Loura1,2, Ana Margarida Ferreira3,4, Joana Romeiro3,5,6
1Local Health Unit of São José, Dona Estefânia Hospital, St. Jacinta Marto, N. 8A, 1150-192, Lisbon, Portugal. davidsloura@gmail.com.
BMC pediatrics
|July 11, 2024
概括
对患有复杂慢性疾病 (CCC) 的儿童进行健康疾病转变需要了解影响因素. 本次审查强调了医疗保健专业人员在支持这些弱势儿童及其家属方面的关键作用.
科学领域:
- 儿科医疗保健服务 儿科医疗保健服务
- 慢性疾病管理 慢性疾病管理
- 家庭为中心的护理.
背景情况:
- 儿童复杂慢性疾病 (CCC) 的患病率越来越高.
- 诊断出CCC意味着儿童和家庭的重大健康疾病过渡.
- 了解这些转变对于促进安全有效的护理至关重要.
研究的目的:
- 绘制有关CCC儿童健康疾病过渡过程的证据.
- 在医疗保健背景下确定影响这些转变的因素.
- 了解CCC儿童及其父母的经历.
主要方法:
- 在2013-2023年间发表的英语或葡萄牙语研究的范围审查.
- 搜索了六个数据库,对患有CCC的儿童 (0-21岁) 和他们的父母进行研究.
- 用PRISMA方法来进行研究选择和数据合成.
主要成果:
- 包括98项定性和定量研究,详细介绍了儿童在过渡期间的特殊需求.
- 确定了促进因素 (如沟通,支持关系) 和抑制因素 (如疾病复杂性,团队协调).
- 观察到积极的 (例如,幸福) 和消极的 (例如,负面情绪) 反应模式,儿童息治疗被认为是有益的.
结论:
- 医疗保健专业人员对于支持CCC儿童的积极过渡至关重要.
- 需要增加对研究和知识传播的投资,以满足这些儿童的需求.
- 提高认识和加强支持系统对于改善结果至关重要.
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