在教育干预后,家长在家里处理儿科抗癌药物的经验
Ranaa Akkawi El Edelbi1,2, Staffan Eksborg1,2, Ulrika Kreicbergs1,3
1Department of Women's and Children's Health, Childhood Cancer Research Unit, Karolinska Institutet, Stockholm, Sweden.
Journal of evaluation in clinical practice
|July 12, 2024
概括
家长在家中使用口服抗癌药物 (OADs) 报告说,在教育干预后,压力降低,日常生活改善. 他们需要从医疗保健专业人员那里获得持续的,个性化的支持,以确保安全的药物管理.
科学领域:
- 儿科瘤学 儿科瘤学
- 患者教育 患者教育
- 主页 医疗保健 医疗保健
背景情况:
- 儿童癌症患者的家庭护理增加了医疗保健专业人员的负担,以培训父母安全使用口服抗癌药物 (OAD).
- 父母在处理孩子的癌症诊断时,在理解药物处理说明方面面临挑战.
- 瑞典缺乏标准化的方法来教育家长在家中正确处理OAD.
研究的目的:
- 探索家长在教育干预后在家处理OAD的经验.
- 评估教育计划对家长在管理儿科癌症药物方面的知识和信心的影响.
主要方法:
- 实施了一项教育干预措施,以增强家长对OAD处理的知识.
- 15名患有癌症儿童的父母参加了定性访谈.
- 通过使用定性内容分析,分析了完整的面试成绩单.
主要成果:
- 父母报告说,他们减轻了压力,提高了对药物暴露的认识,并促进了日常生活.
- 教育干预导致了复杂的情绪,但改善了对正确药物处理的理解.
- 父母强调需要早期的实践培训和医疗保健专业人员的个性化支持.
结论:
- 这项教育干预措施有望改善医疗保健专业人员如何在OAD处理等复杂主题上告知和教育家长.
- 标准化,多模式的教育方法可以使家长在家中管理儿科癌症治疗.
- 持续的,个性化的支持对于那些给孩子提供OAD的父母来说至关重要.
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