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如何让患者作为合作伙伴参与GRAPPA研究?

Maarten de Wit¹, Jeffrey Chau², Suzanne M Grieb³

¹M. de Wit, PhD, GRAPPA Patient Research Partner, Zaltbommel, the Netherlands; martinusdewit@hotmail.com.

The Journal of rheumatology

|July 15, 2024

概括

患者研究伙伴 (PRP) 越来越多地通过牛皮和牛皮关节炎研究和评估小组 (GRAPPA) 融入牛皮病研究. 他们的不断变化的角色增强了患者的声音和研究经验,尽管仍然存在挑战.

科学领域:

类风湿病学类风湿病学
以患者为中心的研究
皮肤病学皮肤病学

背景情况:

患者研究合作伙伴 (PRP) 自2013年以来一直是牛皮和牛皮关节炎研究和评估小组 (GRAPPA) 的组成部分.
PRP作为一个统一的集团运作,以GRAPPA批准的手册和政策为指导.
越来越多的PRP人数有助于在GRAPPA倡议中更好地纳入患者的观点.

研究的目的:

为GRAPPA与会者提供有关PRP在牛皮病研究中不断扩大的作用的信息.
收集关于与会者关于PRP参与的经验和意见的反.
展示关键信息,民意调查数据以及PRP贡献和挑战的例子.

主要方法:

在GRAPPA 2023年度会议上举行30分钟的全体会议.
介绍在GRAPPA和更广泛的研究中不断变化的PRP角色和影响.
通过投票和讨论收集与会者的反.

主要成果:

在GRAPPA中,PRP参与和整合的表现有所增长.
突出了PRP对研究项目的成功贡献的例子.
确定了PRP参与的持续挑战和未来发展领域.

结论:

在牛皮病研究中,PRP发挥着至关重要的和不断扩大的作用,增强了以患者为中心的态度.
持续的合作和应对挑战对于最大限度地提高PRP的影响至关重要.
格拉帕模型展示了一个成功的框架,用于将患者的声音纳入研究治理.

关键词:

在GRAPPA中,我们可以使用GRAPPA.患者参与患者参与患者研究合作伙伴患者研究合作伙伴牛皮是一种牛皮.牛皮关节炎牛皮关节炎

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