一个基于网络的知识数据库,为癌症患者提供基于证据的信息:在PIKKO研究中使用
Nico Schneider1, Uwe Altmann2,3, Florian Brandt4
1Institute of Psychosocial Medicine, Psychotherapy and Psychooncology (IPMPP), Jena University Hospital, Stoystrasse 3, 07740, Jena, Germany. nico.schneider@med.uni-jena.de.
概括
一个基于网络的知识数据库 (WDB) 有效地为癌症患者和航海员提供了可靠的信息,提高了健康素养和知情决策. 世界医疗数据库 (WDB) 对其可访问,基于证据的内容表现出显著的患者参与度和满意度.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 患者教育 患者教育
背景情况:
- 癌症患者需要可理解,可靠的在线信息,而这些信息往往无法通过当前的资源得到满足.
- 皮科项目开发了一个基于网络的知识数据库 (WDB),以解决这一信息缺口.
- 世界癌症数据库为癌症患者提供质量保证,基于证据的信息.
研究的目的:
- 分析WDB的使用模式 (谁,如何,什么).
- 评估WDB对用户健康素养的影响.
- 为了比较患者和患者导航员 (PNs) 之间的使用和影响.
主要方法:
- 评估自动生成的日志文件数据.
- 对患者调查的分析.
- 两组用户的比较:患者和患者导航员 (PNs).
主要成果:
- 患者导航 (PNs) 占所有访问的三分之一.
- 患者 (n=413) 平均使用WDB两次,每次使用12分钟.
- 最重要的患者兴趣:治疗,营养,致癌;PN:治疗,自然疗法,法律支持. 90%的人认为WDB合适.
结论:
- 世界癌症数据库成功地将关键的癌症信息数字化地传递给患者和PNS.
- 世界癌症发展银行有潜力提高健康素养,并在常规癌症护理中支持知情决策.
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