一种视觉方法,以促进在认知障碍的背景下关于支持性护理选择的对话
Annie T Chen1, Claire E Child2, Mary Grace Asirot3
1Department of Biomedical Informatics and Medical Education, University of Washington School of Medicine, Box 358047, Seattle, WA 98109, United States.
Journal of biomedical informatics
|July 17, 2024
概括
一个新的视觉工具可以帮助认知障碍患者讨论未来的护理偏好. 这种方法有助于沟通,以改善健康决策,即使是轻度认知障碍或痴呆症.
科学领域:
- 老年学是一门学科.
- 卫生沟通健康沟通
- 认知科学 认知科学
背景情况:
- 认知障碍,包括轻度认知障碍和痴呆症,在与健康有关的沟通和决策方面存在挑战.
- 语言和认知方面的困难可能会阻碍个体表达未来护理偏好的能力.
研究的目的:
- 开发和评估一种视觉诱导技术,用于讨论支持性护理偏好.
- 探索这种技术在与经历认知障碍的个人进行定性访谈时的实用性.
主要方法:
- 进行了15次在线采访,与轻度认知障碍或轻度至中度痴呆症的参与者进行了采访.
- 利用讲故事和虚拟工具来促进关于支持性护理偏好的讨论.
- 采用了对完整采访成绩单的诱导性定性数据分析.
主要成果:
- 关键主题包括非正式护理人员的可用性/负担,付费护理人员的质量,家庭参与决策和个人决策自主权.
- 观察到的沟通过程,如不响应和不清楚的答案.
- 识别认知过程,如不确定性和认知状态的自我意识.
- 参与者对视觉工具的参与有所不同,有些人积极建议内容并详细阐述讨论.
结论:
- 开发了一种视觉方法,以加强与认知障碍的老年人关于复杂决策的对话.
- 观察到的相互作用模式表明该工具在研究之外的临床和社区环境中具有潜在的适应性.
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