肺移植患者的不确定性和沟通偏好:一项混合方法研究
Allison V Lange1, Anuj B Mehta1,2, Kathleen J Ramos3
1Division of Pulmonary Sciences and Critical Care Medicine, Department of Medicine, University of Colorado Anschutz Medical Campus, Colorado, USA.
Clinical transplantation
|July 18, 2024
概括
接受肺移植评估的患者对未来有很大的不确定性,这会影响他们的生活质量. 改善关于生活影响和未来期望的临床医生沟通对于患者的福祉至关重要.
科学领域:
- 医学 社会科学 医学社会科学
- 卫生沟通健康沟通
- 移植手术 移植手术
背景情况:
- 疾病的不确定性会对生活质量产生负面影响.
- 临床医生对未来的沟通是影响患者不确定性的关键因素.
- 肺移植评估涉及患者未来的重大不确定性.
研究的目的:
- 探索接受肺移植评估的患者如何经历不确定性.
- 调查临床医生关于肺移植评估中未来期望的沟通.
- 了解患者对未来信息的需求和偏好.
主要方法:
- 融合平行混合方法研究,结合横截面调查和半结构面试.
- 使用Mishel疾病不确定性尺度-成人 (MUIS-A) 来量化不确定性水平.
- 对面试的内容分析,以确定患者体验中的关键主题.
主要成果:
- 大多数患者 (86%) 担心未来的生活质量,74%的人报告不确定性阻碍了规划.
- 关键问题包括家庭角色的变化 (76%的重要性,31%讨论).
- 面试揭示了令人不安的不确定性,对实用信息的渴望和各种各样的沟通偏好.
结论:
- 接受肺移植评估的患者经历了重大的,令人不安的不确定性.
- 临床医生往往没有解决关于未来生活影响的重要沟通话题.
- 临床医生应该主动讨论慢性肺病和移植的含义,支持患者应对不确定性.
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