有目的的合作伙伴:促进自闭症谱系障碍黑人儿童的平等和正义
Stephanie Castelin1, Josselyn Okorodudu2, Teresa Smith3
1Department of Psychology, University of Cincinnati, Cincinnati, OH.
概括
黑人家庭希望文化敏感的自闭症护理和更好的导航支持. 这项研究集中了他们的声音,以改善服务,并减少自闭症黑人儿童的健康不平等.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 自闭症谱系障碍研究研究
- 健康 公平 卫生 公平
背景情况:
- 患有自闭症的黑人儿童及其家属在临床护理和服务方面经历了显著的差异.
- 有限的研究专注于黑人自闭症社区的观点,以解决这些不平等问题.
- 了解护理人员的经验对于开发公平的解决方案至关重要.
研究的目的:
- 探索黑人自闭症儿童的照顾者的观点.
- 确定公平护理的障碍,并提出改善服务的建议.
- 集中黑人自闭症社区的声音,解决护理差异.
主要方法:
- 社区领导人和学术研究人员之间的合作伙伴关系.
- 一个小组级评估,涉及31个有自闭症儿童的黑人家庭.
- 在研究活动期间进行协作数据分析和生成行动步骤.
主要成果:
- 确定了黑人自闭症儿童及其照顾者的6个关键服务需求领域.
- 护理人员建议文化敏感的护理和整合他们的优先事项.
- 建议改进导航路线图,心理健康资源和护理管理支持.
结论:
- 这项研究通过让黑人自闭症社区参与寻找解决方案来解决一个关键的差距.
- 建议为服务提供商提供了减少差异的基础.
- 旨在改善自闭症黑人儿童及其家庭的健康状况.
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