患者作为知识合作伙伴在复杂的慢性疾病的背景下
Vox Jo Hsu1, Megan Moodie2, Abigail A Dumes3
1The University of Texas at Austin, Austin, Texas, USA.
Medical humanities
|July 18, 2024
概括
评估患者的知识,包括经验洞察力,对于改善复杂慢性病的护理和推动医学科学的发展至关重要. 将患者作为"知识合作伙伴"进行整合,可以提高临床实践和研究成果.
科学领域:
- 医学人文学科 医学人文学科
- 社会科学 社会科学 社会科学
- 临床研究 临床研究
背景情况:
- 患者的知识,特别是在复杂的慢性疾病中,在临床环境中经常被低估.
- 临床医生在诊断和治疗这些疾病方面的专业知识可能有限,尽管越来越多的人认为患者是利益相关者.
研究的目的:
- 倡导认真考虑并将患者知识纳入临床实践和医学研究.
- 突出临床医生,患者和社会科学/人文专家之间的合作机会.
主要方法:
- 这篇文章讨论了慢性疾病护理中患者知识的不足利用.
- 它介绍了两个案例:一个来自残疾研究,另一个来自医学人类学.
- 它主张从承认"生活经验"到积极将患者纳入"知识合作伙伴"的转变.
主要成果:
- 患者的知识,包括经验,科学和其他形式,应该被评估并纳入医疗实践和研究.
- 与患者和社会科学家/人文科学家的合作可以带来更好的理解和治疗复杂的条件.
- 患有慢性疾病的患者拥有独特的认识论立场,提供有价值的见解.
结论:
- 作为知识合作伙伴,与患者进行有意义的接触对于临床和科学进步至关重要.
- 医疗机构应该培养"深度倾听",并积极纳入患者的见解.
- 认知和严格评估患者知识是提高患者体验和医学科学的关键.
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