关于中风的FHIR实施指南:双重关注患者的临床途径和基于价值的医疗保健
Gabrielle Dos Santos Leandro1, Claudia Maria Cabral Moro2, Ricardo João Cruz-Correia3
1Graduate Program in Health Technology, Pontifícia Universidade Católica do Paraná, Curitiba, Brazil; Center for Health Technology and Service Research - CINTESIS, Porto, Portugal; Prefeitura Municipal de Joinville, Joinville, Brazil.
International journal of medical informatics
|July 21, 2024
概括
这项研究开发了一个用于中风护理的快速医疗互操作性资源 (FHIR) 实施指南 (IG). 这个FHIR IG标准化了数据交换,以改善患者的治疗结果,并简化机构间的护理协调.
科学领域:
- 医疗信息学 医疗信息学
- 临床信息学 临床信息学
- 数字健康数字健康
背景情况:
- 协调性中风管理需要遵守临床途径 (CP) 和基于价值的医疗保健 (VBHC) 原则.
- 互操作性问题和途径与患者体验之间的差异需要在中风护理中改善数据交换.
- 快速医疗互操作性资源 (FHIR) 实施指南 (IG) 为特定医疗保健环境规范信息交换.
研究的目的:
- 开发一种用于中风治疗的FHIR IG.
- 将已建立的中风临床途径 (CP) 和基于价值的医疗保健 (VBHC) 原则纳入FHIR IG.
- 标准化数据交换,以改善中风患者的旅程管理.
主要方法:
- 使用业务流程模型和标记 (BPMN) 建模了中风患者的旅程,并结合了中风CP和ICHOM数据集.
- 开发了一个数据字典,将变量与FHIR资源对齐,调整来自巴西国家卫生数据网络 (BNHDN) 的分析.
- 创建了一个全面的FHIR IG,包含特定的页面,文物,问卷,配置文件,扩展,值集和代码系统.
主要成果:
- 该BPMN模型涵盖了中风患者旅程的三个关键阶段.
- 脑卒中数据字典包含81个变量,通过问卷,个人资料和扩展表达.
- FHIR IG包括96个文物,如27个个人资料和7个问卷,支持ICHOM的成果措施.
结论:
- 开发的FHIR IG显著提升了中风护理中的医疗保健互操作性.
- 它简化了患者结果跟踪,以提高质量和明智的治疗决策.
- 该IG促进了仪表板的创建,以促进在中风患者护理方面的协作卓越.
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